Wednesday 27 August 2014

What You Doing Wednesday Week 114

Good Morning Everyone!

It's beautiful and sunny in the North of the England today :-).
It's so nice to see the sunshine!

I hope your week is going well.

We are on the count down to Little Red
going back to school.
He doesn't think he is ready but I think he is.
We've had such a relaxing summer and it's now
time to get back to things.
This week he has had his hair cut
He is looking so old now!
I can't believe how fast he is growing up.

I only have one picture of a item I'm making this week.
I'm hoping that once Little Red is back at school
I'll have some more time and energy.

I'm making myself a Hitchhikers Shawl.
This pattern is by Strickmith
it's one of the most popular patterns on Ravelry.
I love it because it doesn't take much thinking.
Most of it is made by the knit stitch.
It's very relaxing.

One of the reasons I haven't got much made this week
is I've had a problem with my disability.
It seems it just keeps throwing something at me.
As soon as I think I've got things sorted it sends me a curve ball.

I take amitriptyline to help with my nerve pain and to get into a deep sleep.
One of the symptoms of CFS/ME is that I can get to sleep but I dream all night.
I usually wake in the early hours after spending 4 hours dreaming.
This is exhausting.
The ami stops this and helps you to get into a deep sleep.
Anyway after getting to a high dose and taking it for so many years
it has stopped working.
After 2 weeks of only dreaming I was exhausted.
The dr prescribed me sleeping tablets and said to
try one night and then the next night ami and see how I go.
I took one and slept a whole night!!!
I haven't slept a whole night in over 8 years.
I woke up and felt drunk and had to hold onto furniture
and walls and I was wobbling everywhere.
It looked very funny.
As the day progressed the nerve in my face decided
to get aggravated.
By the evening I was in agony. I took my ami
and nothing, I couldn't sleep I could only sit in pain.
Of course with not sleeping the pain just kept increasing.
I took all my pain meds but nothing helped.
Anyway after 19 hrs of extreme pain I called 111.
It was a tick boxer who answered.
It was bank holiday so I couldn't contact my own dr.
I answered all the questions and he told me to contact
my dr the next day.
I told him that if I didn't get pain relief soon I was going
to cut the nerve out of my face myself.
I did actually mean that. That was how bad the pain had got.
He transferred me through to a nurse.
She agreed with my diagnosis and agreed that until
I got medication that would treat the nerve pain I wouldn't
get any relief.
Off to the out of hours dr I went.
Then I had another fight.
I knew what I needed thanks to a letter from my Neurologist.
He had advised gabapentin previously but if that didn't work Pregabalin.
Gabapentin didn't agree with me but Pregabalin is more expensive
so I had never been prescribed it.
The dr really didn't want me to get a prescribtion.
She actually said why didn't I just take a sleeping tablet.
I explained my dr had advised not to take sleeping tablets & ami.
She said that is true but due to the fact that it hadn't worked I should
of tried it anyway.
I was on multiple medication that can make you drowsy and she
wanted me to take the sleeping tablet as well!
This can cause you to stop breathing!
Anyway after arguing my case and saying that the nerve pain
won't go until I have something that will treat the nerve pain.
I said after 19 hours of  pain I wasn't willing to put up with it anymore.
I won that fight and got a small prescription.
I now have to have the fight with my dr's surgery.
Thankfully my fight was worth it!!!
Within a few hours the pain decreased and I'm now pain free!
In my face anyway.
I still have my other pain but I can put up with that.
What astounds me is if I didn't know what I was talking about
and hadn't known what to ask for I wouldn't of gotten any help.
I would of had to wait till Tuesday and I wouldn't have
gotten the right treatment.
I know the NHS only has a set budget and I know that this medication
is slightly more expensive but I have worked for years
paying my national insurance.
I spend a fortune on alternative treatments and I even bought
my own crutches.
Surely people deserve to be pain free or at least the pain
controlled to a stage where you can function.

Anyway enough waffle about my health and the nhs.

I'm reading The Chamber of Secrets at the moment.
I've read it previously but after watching the Harry Potter
films again I decided to read all the books again.

Now it's your turn to share what you are doing.
It doesn't have to be crochet, anything you are making
is perfect.
Please add the pin to your post & check out a couple
of other people that are sharing their work 
Crochet Addict UK What You Doing Wednesday

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I hope you enjoy the blog!
Thank you ever so much for commenting!
I love reading everything you put and I will try and reply but it just depends on my health.
Thanks Sue